Well, another day of firsts. This time I’ll start with Jade.
She’s still doing great but has a little Apnea (interrupted breathing). This is very common for premies (I think it’s official name is ‘Apnea of Prematurity?’). Anyway it basically means that she can slow down or stop breathing for short periods (5 seconds?) which lowers her heart rate and, of course, her oxygen level in her blood. Not a good thing, but the nurses are prepared (They seem to be prepared for anything).
We were asked by the nurses whether we would like to participate in a study of a med that they have commonly given premies with Apnea but it’s never been officially recommended as a treatment for the condition. So, this study (put on by McMaster U) aims to find out what the long term effects are, if any, to using a specific medication called Caffeine Citrate to treat Apnea. The decision that we seemed to be faced with if we were on the study then there was a 50/50 chance that the medication that the study provided was Not Caffeine Citrate (which is what they would normally use anyway) but rather a Placebo (which is basically just salty-water, does nothing so that the study has a “control” group to compare against).
So I asked the nurse what would happen if they found that the Study medication that they were giving Jade wasn’t working?? Well, of course she reassured me that there were lots of other medications and techniques to help Jade through her Apnea. So that was reassuring. She also reassured us that they wouldn’t be giving the drug any more or less than they would if we weren’t participating. So we’ve decided to help out science a little and Jade will participate in the study.
So here’s another post… ooo Back-to-Back.
Theresa is doing ok today. She had another little bit of trouble with her BP last night but it’s back down (or at least controlled) this morning. She got to see Jade this morning so that was really good. Like Dr. Stubbs said, nothing lowers a mothers blood pressure like seeing and touching and holding her baby!
I had a big day of my own today! I went in to see Jade and the nurse asked me if I wanted to do some of the morning “chores” (ok, she didn’t really ask me, she sort of told me nicely like only a nurse can).
So I got to change Jades’ diaper for the first time! It’s so Big for her! I think I did a pretty decent job of it though… folded it down a bunch so that she didn’t have a diaper all the way up to her nose.
Then I had to swab out her mouth and get rid of all those crusty dry bits in her mouth. That’s the second time I’ve done that, so I’m all pro.
The last thing they had me do was take her temperature. I took the little wand and pointed it into her armpit and held her little arm there (cuz she likes to air out her arms) and the little machine beeped and read 37.5C. A little above normal so they turned down the Isolette/Incubator a little. As she grows, Jade will start producing more of her own body heat, so they have to keep a close eye on her temperature so that the incubator isn’t too hot for her. Of course they also use it to check to make sure she doesn’t have any infections or a fever.
Other than that I don’t think there’s too much else to say. I have a bunch of pictures to post so I’ll get on that right now and I’ll probably post again later this evening.
Well, it’s been over a week now since the craziness started. It’s amazing how fast things change, I’m glad I’m blogging all this here because there’s no way I’d be able to remember all the details.
Went in early to see T this morning. She woke up this morning with a really bad headache… the nurses have been asking her ever since she got there whether she was having headaches or any visual weirdness. Well, today was the day. Her blood pressure was way up (180/122) so they gave her a new, brown pill and a little tylenol. It took away her headache and knocked down her BP to 140/90… lower than it’s been for 4 or 5 days.
Unfortunately, the spike means the nurses are really leary about letting her out of bed long enough to go see Jade. But there are Doctors orders now to let her go at least 3 times a day so hopefully now that the new medication is having a positive effect, she can go see Jade later this afternoon.
Other than the BP Theresa is feeling better and better. Her stomach doesn’t hurt nearly as much anymore… still pretty sore when she gets up, but the swelling has gone down even more so that’s relieved a lot of pressure off the stitchs from the surgery.
She officially has elbows again and she can feel her ribs again and her legs are only about twice the size as they originally wear.. so all in all she’s looking and feeling much more like Theresa.
As for Jade… big news last night was her weight. 786g. 6 grams more than when she was born! Hooray! Apparently a bit of that is fluid from the new IV, but it’s still a great gain! So we know she’s growing nicely!
I also asked about the Ultrasound they took of her head and body on Tuesday and apparently it all came back fine. So that’s more encouragement. She doesn’t have any air in her belly anymore so we can really see her take breaths. It’s a little strange looking because she’s of course not really used to breathing so she’s pretty jerky and spastic sometimes. But I guess as long as she’s getting all the oxygen she needs it’s OK! 🙂
Oh ya… and along those lines, she’s been back down to normal air since last night and into today. So that’s great. The less oxygen the better!
I think that’s it for now!